If your child has been diagnosed as having Autism, Spina Bifida, Cerebral Palsy or Down Syndrome, click on the appropriate link below for additional information. Each link also provides a glossary of terms, directions to books and magazines that provide more in-depth information and contact information for community resources that offer additional services and support to Grandview clients in the Durham Region.
Diagnosis Information Resources
| Autism | Cerebral Palsy |
| Spina Bifida | Down Syndrome |
Ability OnLine
A free internet community where children/youth with disabilities/illness and their parents can meet others like them, make friends from all over the world, share their hopes and fears, find role-models and mentors, and feel like they belong. This site also provides many useful links related to a variety of disabilities. www.ablelink.org
Arthritis Society
Provides useful information on forms of arthritis, resources, tips and more. www.arthritis.ca
Autism Ontario
Is a non-profit organization dedicated to ensuring that every individual with Autism Spectrum Disorders (ASD) is provided the means to achieve quality of life as a respected member of society.
Ontario Foundation for Visually Impaired Children
provides useful information on various issues relating to visual impairment. (416) 767-5977
The Registry of Early Childhood Visual Impairment
Composed of educational and medical professionals from across North America who are committed to early intervention and special education services for children with visual impairments. http://www.blindbabies.org/registry.htm?
Canadian National Institute for the Blind
Offers a variety of programs and services to individuals who are blind, visually impaired and deaf-blind. www.cnib.ca
Spina Bifida and Hydrocephalus Association of Ontario
Supports those with Spina Bifida and/or hydrocephalus and their families with the challenges brought on by these serious disabling conditions through programs and services that focus on research, awareness, care and advocacy. www.sbhao.on.ca
Learning Disabilities Association of Ontario
Provides leadership in learning disabilities advocacy, research, education and services and strives to advance the full participation of children, youth and adults with learning disabilities in today’s society. www.ldao.ca
FamilyNet
Provides a forum for patients and families to share stories and experiences.
www.oacrs.com/resource-familynet.php
Ontario Brain Injury Association
Committed to enhancing the quality of life for those living with an acquired brain injury, through a variety of services, and initiatives. www.obia.on.ca
Head Injury Association of Durham
(905) 723-2732
Precious Minds, North Durham Region
Provides support, resources and financial assistance to families of children who have barriers to learning, in North Durham Region. www.preciousminds.com
BBB Autism Online Support Network
A parent support website that offers information about Autism Spectrum Disorders (ASD)/Pervasive Developmental Disorder (PDD), related disorders, school issues, therapies, communication, international conferences and more. www.bbbautism.com
The Geneva Centre for Autism
Provides training, resources and support for individuals with Autism, Pervasive Developmental Disorders, and their communities. www.autism.net
Central East Preschool Autism Services (CEPAS)
An intensive intervention program for children with Autism, hosted by Kinark Child and Family Services. www.kinark.on.ca/services/CEA_CEAP.aspx
Autism Treatment Services of Canada
A national affiliation of organizations that provide treatment, education, management and consultative services to people with Autism and related disorders across Canada. http://www.autism.ca/
The Canadian Down Syndrome Society (CDSS)
A national organization whose mission is to enhance the quality of life for all individuals who have Down Syndrome through advocacy, education and providing information. www.cdss.ca
Durham Down Syndrome Association
The Durham group hosts support groups for families, provides hospital visits, and produces an information package for new parents. A quarterly newsletter is available as well as a resource library. (905) 619-0073
Down Syndrome Association of Toronto
A charitable, non-profit organization, created by parents to provide a network for parents, create a positive image, and ensure the availability of services to all persons with Down Syndrome. http://dsat.ca
Fetal Alcohol Syndrome Support Network
905-697-9064
FASlink (Fetal Alcohol Syndrome)
The Canadian Fetal Alcohol Syndrome Internet support, information, advocacy and discussion forum. www.acbr.com/fas/index.htm
Klippel-Feil Syndrome Support Group
(905) 432-1049
Muscular Dystrophy Association of Canada
provides relevant and current information about many types of neuromuscular disorders, as well as assistance obtaining necessary equipment through loans and/or funding. www.mdac.ca
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Durham Region Chapter – (905) 721-0380
Canadian Paraplegic Association
Assists persons with spinal cord injuries and other physical disabilities to achieve independence, self-reliance and community participation. They offer support, counselling, advocacy and information services. www.canparaplegic.org
Ontario Federation for Cerebral Palsy
A non-profit charitable organization that addresses the needs of people with Cerebral Palsy and other physical disabilities, through provision of services and programs, advocating and promoting awareness, and encouraging and supporting research and education. www.ofcp.on.ca
Cerebral Palsy Canada
Provides a network of resources that support individuals, families, caregivers and professionals, whose lives are touched by Cerebral Palsy. www.cerebralpalsycanada.com
For My Child
Provides information and support to families affected by Cerebral Palsy and other birth injuries. www.cerebralpalsy.org
Ontario Prader-Willi Syndrome Association
The Ontario Prader-Willi Syndrome Association (OPWSA) is a non-profit, charity which was established in 1982. Their mission is to enhance the quality of life for individuals with Prader-Willi Syndrome. www.opwsa.com
Prader-Willi Syndrome (Durham Chapter) - (905) 427-7256
Rose of Durham
A day program that offers services and supports to young parents and their babies, including counselling, prenatal classes and workshops. (905) 432-3622
S.O.F.T. (Support Organization for Trisomy 18, 13 and any other disorder which produces serious, multiple birth defects)
A nonprofit volunteer organization offering support for parents who have had a child with a chromosome disorder, and education to families and professionals interested in the care of these children. www.trisomy.org
Durham Region
(905) 579-9215
VOICE for Hearing Impaired Children
Their mission is to ensure that all hearing impaired children have the right to develop their ability to listen and speak and have access to services which will enable them to listen and speak. They develop and implement programs and services in parent support, public education, auditory-verbal therapy program and advocacy. www.voicefordeafkids.com
Tuberous Sclerosis Complex (TSC)
Dedicated to the principles of providing encouragement and support to individuals and their families diagnosed with Tuberous Sclerosis Complex (TSC); raising public awareness and educating our communities of TSC; and to promote and support research aimed at the cure for TSC and/or control of Tuberous Sclerosis symptoms. http://www.tscst.org/